On February 16, 2010, our lives changed forever. We learned that John has advanced, stage 4, inoperable lung cancer. (He has never smoked a cigarette in his life.) It has spread to his spine, his pelvic bone, his adrenal glands, both eyes, and his brain. We were shocked when the oncologist gave us the prognosis: without treatment, the prognosis would be 1 month. With treatment, the median or average survival is 4 months. A really good prognosis, with treatment, is 12 months. He has seen some cases, however, where the patient has survived 3 years, and one has survived 7 years. The brain metastases are what make his prognosis so bad. We are hoping for a miracle, but we are going to accept the Lord's will in this matter. We have seen His hand in our lives, preparing us for all of this, and we are filled with gratitude for our many blessings. This is a blog to document our journey through this trial.

Thursday, April 1, 2010

Blessings

We are learning that this journey has many twists and turns. On Monday we spent the entire day at UW Hospital having a CT scan, a bone scan, and an MRI, in preparation for John's starting chemotherapy the next day. We were excited to start chemo; he had decided on a clinical trial, recommended by his oncologist, which really seemed like the best choice. We were at the hospital bright and early Tuesday morning for the lab work, all ready for the 6 hours of I.V. chemotherapy. We met with the oncologist first, and that's when we received the news that the results of Monday's scans showed that the brain metastases are slightly worse, which excludes him from participating in the trial. This was a disappointment.

But then we received some very good news! When John's lung biopsy was done in February, a sample of the tissue had been sent out to be tested for a mutation called EGFR receptor. Only 8% of all tumors harbor this mutation, which is only found in never-smokers. The oncologist had told us that if the tumor harbors this mutation, there's a drug called Tarceva that would be very effective. We've been praying for weeks that the tumor would have this mutation. The results just came back, and it is positive for the mutation! We are overjoyed! This is truly a miracle. So yesterday John started on Tarceva, a once-daily pill form of chemotherapy, and hasn't had any side effects yet; he's just still very tired.

We think of Tarceva as our wonder drug! For people who are mutation positive, the response rates are very good. With standard chemotherapy, the lung tumor would have a 20% chance of shrinking; with Tarceva, it has a 60--80% chance of shrinking! We love those statistics!

We remain happy, grateful, and optimistic. We continue to count our blessings. Our daughter, Allison, from Orange County, California, came out for a visit for five days! Her husband, Nate, who's a grad student, had spring break and was able to take care of their two little ones so that she could come out to spend some precious time with us. I'm sure he had his hands full with our beautiful little granddaughters, Jane, who's almost 3, and Elsie, who's 10 months old. But he never complained, bless his heart, and he did a great job. It was so wonderful to have Allison here.

Our hearts are gladdened by the many comments on this blog from so many of you, and also by the many emails I've received from so many of you who didn't want to write on the blog. We are touched by your love and prayers. You'll think this is funny, but most days, early in the morning before John is up (he's very tired and sleeps late these days--a huge change for him) I actually come into our little den where the laptop is, and I read all the comments on the blog every morning first thing, and then again before I go to bed. I just love reading all of them, over and over! They are so heartwarming and uplifting. I feel as if you are all right here with me. It's also been wonderful to hear from people from my long-ago past--what a joy!--and from a few people I don't even know, such as Hilary's friends! How wonderful to know we are in your prayers. I thank you all from the bottom of my heart.

Yesterday Mona brought us an amazing dinner, and last night our home teachers came over. Today Hilary, Jack, and little Grace, who just had her first birthday, are coming over. And tonight we are going to the Stake Center, where John will be meeting with the Stake President in preparation for our going to the temple soon!

Life is so full and rich and wonderful. John and I are enjoying spending so much time together. Because he has trouble with his near vision, I read the Book of Mormon to him every day, something we both enjoy so much. We find new blessings at every turn. I know that Heavenly Father is watching over us and is concerned about John and mindful of him and what he is going through. I can feel His love for us. Thank you all for your prayers. I know they are heard. We can feel their power.

14 comments:

  1. Harvada - you are all in my thoughts and prayers. You were great neighbors in WI.

    Bob Cleiss

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  2. What great news about the medication! Thanks for the update. I'm very impressed with your optimism and hope to react the same way in the big and small adventures that come to my life as well.

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  3. this is Nate's sister Amelia, I just wanted to say that your whole family is an inspiration to us, what an example! We are so blessed to have Allison in our family and I know it must be really hard for her to be so far away, we have prayed and fasted for you and I am grateful for your perspective which helps me see the important things in my life.

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  4. The blessing for us is in knowing such truly geniunely good people. Continued prayers and God's grace and blessings are wished for you and your family.

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  5. Hello! I am Hilary's friend from BYU. I just wanted to let you know that your family is in my prayers. It is inspiring to see your faith and hope, and to see the miracles unfolding in your life. I am so happy that you are going to be able to be sealed as a family--nothing could be more important! Your faith in the Lord will make the brief time that you will be separated bearable. My heart goes out to you and your family.
    Love,
    Laura & family

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  6. Harvada,
    Dan and I love having you as neighbors. What an extra special blessing. Please know that we have you in our prayers every day. We love you both.
    Josie and Dan

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  7. Harvada and John,
    This is wonderful news! Filled with hope that John's condition will improve. Heavenly Father hears our prayers and He has answered them.
    May the blessings continue every step of your journey.
    Love to you all,
    Cindy Rice

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  8. Hello Harvada! Your enthusiasm and hopes for the new protocol comes through your text . . . . We're with you, hoping and praying that you will be seeing the best results, soon. Please remember all of us have you in our thoughts and prayers; have even added a couple of my Aunties, and of course, my brother and sisters and their families. So, keep up the good spirits, and know that you are Loved!!! Mary Claire and Bob

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  9. Michelle SchwibingerApril 13, 2010 at 10:22 PM

    All day long I've been thinking of you. That's probably God nudging me to write. I understand the tiredness; that's just the way it is, so no use fighting it. Time for light magazines, sitting on the porch, and just listening to others converse. Hang in there! This sends prayers your way, oh, and love,too!!

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  10. Harvada, I'm Sandy's sister, Carol, and Travis and Hilary's aunt. Pam told me about your wonderful blog. Thanks for sharing with us. I know you're both such amazing people. I can see why Hilary is so special. Our thoughts and prayers are with you. Thanks for your cheerful examples for all of us.

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  11. John,
    This is a voice from your past at Northwestern and Chicago. It's been nineteen years we've been out of touch. Such sad news I got by way of Brian Butner and Karen Lupa.
    That's hopeful news about the mutation and the new drug. Glad to see you have so many family and friends to care about you. I'll be thinking about you and hoping for the best.
    Curt

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  12. You and your family have continued to be in our prayers. Our family is dealing with a recent cancer diagnosis with my mom. Very new...very shocking...and your optimism and perspective are very encouraging. Thank you for your faith. I find that my own faith is small, struggling, and in need of great examples such as yours. Can you imagine going through this experience without the understanding of the plan of salvation??? Unimaginable. Our struggles with human feelings and emotions are difficult enough, but the spiritual strength brought through the restored gospel and the blessings of the temple bring a measure of sanity. Thank you for being strong and realistic at the same time. Again, our prayers are with you. That i all that we can really do at this point! We love you...each of you (Hilary and Allison, I think of you often and love the pictures of your beautiful families!!! :) )

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  13. Eat an alkaline diet. Get rid of the acids. Expect a miracle!

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  14. John and Harvada:

    While the circumstances were not good ones, it was great to see you this past winter. You both looked great and I think I speak for everyone that has ever met the two of you, and that is we all are praying for a miracle and good health.

    Hang in there as best as you can, and go Cats.

    Love,
    Peter & family

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