On February 16, 2010, our lives changed forever. We learned that John has advanced, stage 4, inoperable lung cancer. (He has never smoked a cigarette in his life.) It has spread to his spine, his pelvic bone, his adrenal glands, both eyes, and his brain. We were shocked when the oncologist gave us the prognosis: without treatment, the prognosis would be 1 month. With treatment, the median or average survival is 4 months. A really good prognosis, with treatment, is 12 months. He has seen some cases, however, where the patient has survived 3 years, and one has survived 7 years. The brain metastases are what make his prognosis so bad. We are hoping for a miracle, but we are going to accept the Lord's will in this matter. We have seen His hand in our lives, preparing us for all of this, and we are filled with gratitude for our many blessings. This is a blog to document our journey through this trial.

Saturday, April 17, 2010

Flowers Blooming All Around Us

My long silence on this blog is not a sign that things have been going badly. Things have been going well! I just seem to have been very busy; the days are so full, and they are flying by. John and I are enjoying having so much time to spend together! We are loving it. He had always worked such long hours in his medical practice, and for over 15 years I'd had my bookstore in Appleton; our time together was always precious. But now the pace of life has changed, and it's wonderful to have so much time together. Yesterday we had a visit from our old friends, the Stoehrs, from our old Church ward in Appleton (including three generations of their family!). I told Deb I've been feeling guilty about not having posted on the blog for such a long time, and she encouraged me to do so. She pointed out that a long silence might lead people to think that things aren't going well. This has motivated me to post! (Thanks, Deb.)

So, an update: John is doing great! He continues on the Tarceva, a pill which he takes daily. He's tolerating it well. He'll be scanned again in late May to see if it's working. If it is, he can stay on the Tarceva indefinitely. The oncologist told us that one side effect is a rash on the face and trunk, kind of like teenage acne. He said a bad rash can be a sign that the Tarceva is working well; there's a correlation between the rash and response to the drug. After four days on the drug, John woke up with a rash all over his nose and cheeks! We were so happy and excited! Acne has never been celebrated like this by any teenager, or by anyone else! The rash has since spread to his chest and back. He does have an oral medication and a topical gel to control it.

He's still pretty tired, has a bit of trouble getting going in the mornings, and has lost all his hair and most of his eyebrows, but has been maintaining his weight, and his positive and cheerful attitude never fails. When we have our daily family prayers, he still prays for a miracle, and that we might be blessed to be able to grow old together. But at the same time we are realistic, and having honest and open and heartbreaking discussions.

We know we are in the Lord's hands, and we trust Him completely. We are so overjoyed to know that the First Presidency of the Church has approved John's going to the temple early, before the usual one year waiting period after baptism, so that we can be sealed to each other and to our children very soon! The gospel of Jesus Christ has brought so many blessings into our lives. We're so grateful to be members of our Church. Some might think living the gospel is hard, but it's not. Life can be hard, but living the gospel is easy. It brings us great comfort, especially at this time of trial.

And it's springtime, and we have flowers blooming all around us, and sweet birds singing! We're just having so much fun, and enjoying each other's company, and our friends and our family, and there's almost too much beauty for us to bear.

12 comments:

  1. Thanks for the update! I'm so excited that you get to go to the temple soon! How wonderful!

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  2. Thank you for the update! Thank you for your wonderful optimism and appreciation of life, It's contagious! Glad to know that you'll be able to be sealed together soon. The Lord is mindful of each one of us. We continue to pray for you.

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  3. I've never been happier for anyone's face breaking out than I am for John! I'm so glad the medicine seems to be working. Thank you so much for updating and for sharing your testimony. And we couldn't be more delighted that you will get to enjoy the blessings of the temple sooner! We love you!! (the Stocks)

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  4. Thank you for the very thoughtful and kind note you sent to me. I really appreciate your love and support, especially with all that you are going through. We are excited that you get to go to the temple soon. It will be a great blessing for all of you. You continue to inspire us and strengthen our faith as well. We love you and pray for you.
    Love,
    Colleen

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  5. We continue thinking about you both and praying for you all. Love, Wendy and Gary LeDoux

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  6. I've never been so happy to hear about somebody's acne before! :) I'm so glad that you are getting to spend so much time together. That's wonderful. And that you for the update. Your optimism and faith are truly inspiring. --Emily (Dimond)

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  7. I'm so glad to hear that things are going well. How exciting that you will be able to go to the temple soon! We're praying for you!

    Love,
    Alex and Natalie (Price) Barnum

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  8. I'm so glad that he's doing well with this drug! We'll be praying for you!

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  9. I love every opportunity to feel the spirit and when I read your words I am surrounded by it. Thank you for ...everything.
    Love Alice

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  10. What wonderful news!! It is so encouraging to read the love and commitment you both share. I will continue to pray for God's blessings for you both.

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  11. Dr Elisberg... my prayers and thought are with you. I want to say thank you for believing in me 25 years ago and getting me my start in health care and the lab.

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